Uncovering the Genetic Link in My Family by Lisa Parcell

Rare Kidney Disease Foundation

Published on: 25/09/2025

Our family’s chronic kidney disease dates back to the late 1800’s—at least six generations have been affected by it. Growing up, I watched both my grandmother and my mother go through dialysis and eventually receive kidney transplants.

Patient Stories

My Family’s Experience with Genetic Kidney Disease

Rare Kidney Disease Foundation

Published on: 27/02/2023

We now have a beautiful 6-year-old daughter. The worst part about my experience with this genetic disease is that even she is positive with the mutation. The only ray of hope I see is for my brother & me to get enrolled in the future clinical trials.

Patient Stories